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Read part one
Read part two
Read part three
Read part four
Read Part five

Five years ago today, we got the final biopsy report. The radiologist had found a malignant tumor wrapped around main arteries that came off of my husband’s aorta. This was shutting off the blood flow to his liver, which was now infected and inflamed. There were many tumors throughout his abdominal cavity. The statement was made that the longer Art lived, the greater the possibility of “cancer pain”.

He was put on antibiotics for the infection and we headed to our pastor’s house to pray.

We still didn’t know what kind of infection, what treatment options there were, of if any of them would work.

I don’t remember emotions – just numb. I remember other people praying for healing, all I prayed for was peace and strength for me, comfort for my husband and faith for my kids.

In a couple of days, we would speak with the cancer specialist and go from there…

(thank you, Phil)

The Case for Covenantal Infant Baptism“, edited by Gregg Strawbridge

This is a set of essays by several men and I’ve read the first two so far.

Here are a few questions that should be asked with an open mind and heart.

How many hundreds of years did the Jews understand that the covenant sign was to be applied to the entire household?

Since many of the new Christians were Jews, doesn’t it seem a little strange that none of the letters to new believers addresses the change?

After 2,000 years of applying the covenant sign to a household, shouldn’t somebody have told the Jews to stop?

Read part one
Read part two
Read part three
read part four

We got back from my parents’ house last night and things with my mom can get very frustrating. There are days that I don’t think that I would mind moving a continent away from my mother and Saturday was one of them.

But also on Saturday, we let my daughter drive to the cemetary (the world is NOT ready for MissManda driving). Within a “stone’s throw” all of my immediate family on my dad’s side is buried. My dad, my daughter and I walked around for about an hour. Most of the people Manda had never met, but one that she does remember is her dad. In 2002 we planted a couple of arborvitae and one of them is growing faster than the other and she’s concerned about that.

My grandparents’ first four children all died before number 5 was born. This was in the early 1920’s and they died of things like dehydration after influenza, appendicitis, a bowel obstruction. My dad was next to the youngest of nine, so he never met these siblings, but every year he takes care of their graves.

Two more aunts and an uncle, my grandparents, both sets of great-grandparents are buried nearly in a row. My dad’s cousin (Ruth) cut my hair when I was a little kid. My Great-aunt Mabel loved books, that’s what I remember most about her. My favorite “aunt” was actually a Great-aunt, Susie and she is there.

My closest cousin’s “other grandpa” is buried right there also – there is a double gravestone and 30 years later his wife is still alive, seeing her name on the stone every time she visits.

Very close, a distant relative is buried – the husband died first and there was another double grave-stone with his wife’s date of death left blank and next to that is another grave where the second husband of the wife is buried. She has outlived them both.

This was a good trip for me to make – I’m looking forward to this “anniversary of endings” and this is where the ending ended.

So I remember more of that ending…

On April 22 of 2001 I had written on another forum, in another place, “my brother had been out of the church for 20 years and didn’t want anything to do with it. I chatted with him on line this morning and he said things like” God is in control, you just have to trust him” and “I’ve been watching you, don’t give up now.”

At this point, he is a fairly regular church attender and his family was in church with us yesterday.

On April 23, five years ago, I had written, “12 hours later, lots of questions and none of them answered. They took several “swipes” through Art’s liver and took several samples. the pathologist in the rooms said that he saw cells with “inflammation” but couldn’t say that he saw any cancer cells. So they sent them to the regular lab. They say “atypical” cells, but couldn’t say that they saw any thing they coud say looked like cancer. Possible tumor outside the liver, pockets of fluid inside the liver (possible infections). We should have results tomorrow afternoon. His hemoglobin was low and they gave him 2 pints of blood”

We had no clue what was in store, still clinging to the hope that was held out.

Away…

We’re going to my mom and dad’s house for the weekend – we saw them in October before they went to Florida for the winter so this will be a good weekend.

We’ll stop at Tim Horton’s on the way (we don’t have those where we live, so it’s sort of a treat). We’re getting a bit of a late start because my daughter has her first “real date” this afternoon – she’s going to see “Ice Age 2″ with a very nice young man from her youth group at church.

My siblings will most likely all be around (one of them might have a “function” to attend). I will try to not talk about politics, although mostly my family agrees on all that. Also Calvinist stuff, everybody agrees on all that except for me…although the weather is fairly warm so if we’re asked to “take it outside”, we can. I’m taking “The Case for Covenantal Infant Baptism”, and I’m in a family where everybody is in churches that just don’t do that.

Anyway…until then, “compare and contrast” the difference in these two stories from about a month ago…

Read part one
Read part two
Read part three

April 18, 2001. We started a roller coaster ride that would take us down, up and then down again. Five years ago, the “gastro-intestinal” specialist told us that the CT scan (results finally) looked like there were multiple tumors “all over”. Needless to say, we were quite stunned.

This was a Wednesday night and we went to prayer meeting. One of the songs that we sang was “Because He Lives”

“Because He lives
I can face tomorrow
Because He lives
All fear is gone
Because I know
He holds the future
And life is worth the living
Just because He lives”

The doctor had refused to give us any kind of assurance of any kind of treatment or timeline – his specialty was liver, not cancer. So we really didn’t know what tomorrow would hold.

On the 20th (five years ago today), the cancer specialist called us and said that he had seen the scan and he was not convinced that these were tumors. There was a possibility that the spots were lesions (scar tissue) from post-surgery swelling.

We were being handed hope.

We still didn’t know what tomorrorw would hold, but we did have hope.

Another biospy was scheduled for the next day (April 21) and we would know the results the next day (one of the perks of having a cancer specialist rather than a liver specialist order the biopsy).


This is why I sometimes have trouble posting every day.

(Meet Henry – all 20 pound of him)

We just covered Immanuel Kant in philosophy class and the “Kingdom of Ends” “Act in such a way that you always treat humanity, whether in your own person or in the person of any other, never simply as a means, but always at the same time as an end.”

A very dear friend noted a couple of weeks ago that “every man in America is one false accusation away from having his life ruined.” It seems that by merely making the accusation, a man can be convicted, without ever having been to trial. And it appears that the best evidence in this case is the accusation.

What is the end that this woman could gain?

- Photos have come to light. I haven’t seen them, but I have read that 1) they are timed stamped, 2) time stamps can be altered, but in one of the photos there was a wrist with a watch that matches the time stamp. These photos show this woman showing up at the party already bruised and cut – already showing the signs of the alleged rape. The later photos show her under the influence of a recreational substance, smiling and looking through her purse.

- There is no claim of DNA evidence from the woman’s body.

- There is a paper trail that causes difficulites for the woman’s story and appears to create an alibi for at least one of the men.

- There is also information that she has been contacting lawyers and trying to find civil lawyers to possibly discuss suits in this case, or financial compensation for her.

What is the end that this woman hopes to find? and by what means? Are the men that she has accused the means, or the end?

Another person involved with all of this is Durham (N.C.) district attorney Mike Nifong. Mr. Nifong happens to be facing a May 2 primary and has been accused of pushing this case forward for political gain.

- Grand juries only hear the prosecutor’s side of the story. Only the evidence that could convict, and none that could aquit is presented.

- The primary that Nifong faces is less than two weeks away – and right now he’s looking like he’s going “great guns” to protect the weak. Did he rush to the Grand Jury in order to make an announcement to prosecute just before the primary.

What is the end that Nifong hopes to find? and by what means? Are these men that he is prosecuting, and the woman that he prosecutes for – are the means, or the end?

I believe that when all is said and done, there will be enough “means” to go around. It doesn’t sound very much like there is nobody who is innocent.

If every person in this story had treated the others as the end, and not a means, what would have happened?

If the woman had respected her own self, she may never have even shown up at the party. She might not have done a lot of things. If she had respected the men, there are also a few things she might not have done.

If Nifong had respected the woman, would he put her at risk of a false accusation? If Nifong had respected the men, would he have rushed to the Grand Jury?

If Nifong has a respect for justice, what should he be doing?

http://abclocal.go.com/wtvd/story?section=triangle&id=4074964

We went to a little church. Christian Reformed, inner city, very mixed. The worship (singing part) was very lively and spirited. I really like it.

Unfortunately (due to either miscommunication on my son’s part or misunderstanding on mine), I thought that he had to be at work later than he did, so we had to leave early (before the sermon even started).

The church is very small (less than 100 people, including kids) – that means there will fewer study opportunities, but more ministry opportunities.

This is the first church we’ve visited that I want to go back to

Read part one
Read part two

Six years ago, on Easter Sunday, my father-in-law went to be with the Lord. It was very sudden and he just quietly slipped away in his sleep.

We were still very unsure of my husband’s future and he “felt” like his father had died because it’s not “right” that an adult child should die before his or her parent. He thought that his mother would die soon also.

It was a hard Easter Sunday morning, and yet we were all at peace – what a wonderful time to go to see Jesus.

On the “day” that celebrates Jesus resurrection, my father-in-law went home.

It’s a very small church, very mixed congregation, not very far away.

It’s a church that is not ashamed to have “Reformed” on the sign out in front, which is important to me. All of the elders are male, which is becoming increasingly important.

Easter seems like an odd time to visit, but when I contemplated going back to Sunshine, even for Easter Sunday, I felt like I was jerking myself (and my kids) around.

I need to be in an established church and Sunshine is not going to be it. Once I made that choice, it was time to be on the hunt. It’s an 11:00 service, so I’ll let you all know later what’s up with that.

The post is here. Some days I feel like life really is a race, other days I feel like it’s a test in a class that I didn’t even know I was signed up for.

(I tried to do the backlink thing but the other blog wouldn’t appear to let me)

Good Friday

Father, forgive them for they know not what they do.

“God sent me before you to preserve for
you a remnant in the earth, and to keep
you alive by a great deliverance.” Gen. 45:7

“…Forgive us our debts,
as we also have forgiven our debtors….”

Today you will be with me in paradise

He will call upon me, and I will answer him;
I will be with him in trouble,
I will deliver him and honor him. Psa. 91:15″And it shall come to pass that
everyone who calls upon the name of the Lordshall be saved.” Acts 2:21

Woman, here is your son…here is your mother.

Yet you brought me out of the womb;
you made me trust in you
even at my mother’s breast.
From birth I was cast upon you;
from my mother’s womb you have been my God.
Psa. 22:9-10

“If anyone does not provide for his relatives,
and especially for his immediate family,
he has denied the faith and is worse than an
unbeliever. 1 Tim 5:8

My God, my God, why have you forsaken me?

My God, my God, why have you forsaken me?
Why are you so far from saving me,
so far from the words of my groaning?
Psa. 22:1

“He has now reconciled in his body of flesh by his death,
in order to present you holy and blameless
and above reproach before him” Col. 1:22

I am thirsty

If your enemy is hungry, give him
food to eat;
if he is thirsty, give him water
to drink. Prov. 25:21

They gave me poison for food,
and for my thirst they gave
me sour wine to drink.
Psa. 69:21

I tell you the truth, anyone who gives
you a cup of water in my name because you
belong to Christ will certainly not lose his reward.
Mark 9:41

It is finished.

“The time is coming,” declares the LORD,
when I will make a new covenant
with the house of Israel
and with the house of Judah.” Jer.:13:31

Unlike the other high priests, he does not need
to offer sacrifices day after day, first for his own sins,
and then for the sins of the people. He sacrificed for their
sins once for all when he offered himself. Heb 7:27

Father, into your hands I commit my spirit.

Into your hands I commit my spirit;
redeem me, O LORD, the God of truth. Psa 31:5

“…and whoever lives and believes in me will never die.
Do you believe this?” John 11:26


Manda says that Simone is a cashew also.

(very few people on the planet know what that means. I’m not even quite sure, other than it means that my daughter is – ummm – interesting)

Read “Ancient History (part one)”.

Five years ago, this week was one of waiting.

There was no reason that a routine CT scan should take 4 or 5 days to get the results back, but they didn’t come back and didn’t come back.

Waiting is so hard! I remember being very angry and the more I found out about PSC, the angrier I got.

My marriage had not been great and I was looking into a future of great unknowns.

My husband had never really shared household responsibilities (not just housework, I mean taking care of cars, the budget, school stuff – many times I felt like I was a single person who happened to have a husband). Now, I was taking care of even more.

Bluntly, the only thing that had ever worked really well (consistently) was the bedroom area. And now, that was not working. (I found out later that when the liver gets involved in pathology, that type of disfunction is very common.)

On one hand, I remember feeling more like a wife than I ever had before. Art had never let me share in helping him. Oh, of course I could do all of the stuff that needed to be taken care of around the house, but Art would not let me close enough to help Art. Now, he had to and that was very fulfilling for me.

On the other hand, I remember feeling selfish, telling the psychologist (I was seeing him just to get things sorted out in my brain) that one of the worst parts was knowing that Art could live for another 10-15 years and never be any better than he was at that moment. I remember telling him that I didn’t want to be a nursemaid/maid/housekeeper/accountant/everything else in a sexless marriage – but “in sickness and in health” was an essential part of my marriage vow. If this was the marriage that was in store for me, I was trapped.

There is no treatment that “cures” PSC. The only real treatment is a liver transplant and Art’s cancer would rule out putting him on the transplant list. The way around that is to have a family member donate a part of their liver and I (even as a wife and not a blood relative) was a very hopeful match. The CT scan would (hopefully) tell us how much of the liver was involved and how much time we might reasonably expect before a transplant was needed.

So we were stuck in “waiting mode”.

and another

A commenter on Thinklings posted the link.

This little girl has been on my heart and mind.

Tomorrow my daughter and I give our presentation on the “History of Christian Music” and I’m in the process of burning the songs we’re going to use (2 of them) to a CD so we don’t have to shuffle music in the middle of the talk

We’re going to us “Wedding Dress” by Derek Webb and “Hold Fast” by Flatfoot 56. Other artists mentioned will be MercyMe (with a new CD coming out later this month) and Steve Camp.

This class (well, the instructor) is turning out to be irritating. She dinged me 20 points out of 100 on the research paper (I do not get 80’s on writing papers) for not writing about a piece of music (written by the composer that I wrote on) that I’d listened to. In the syllabus the requirement was to “choose a piece” (nothing about listening to it or writing about it) and she verbally changed the requirements of the paper in class to “listen to a piece of music” (nothing about writing about the experience).

In my paper I talked about one of the pieces by one of the composers I’d covered. I listened to it but didn’t write about the experience. I don’t think I should have been dindged 20%. Further, I talked to several different people in the class and they also had the same number of points taken off. It’s a small class (20 people) and if that many didn’t understand the requirement, it doesn’t sound like it’s totally our fault.

My kids have never seen me go to the mat over the difference between an A and a B. ;-)

An A- in the class will bring my GPA down slightly. With an 80 on this paper, I cannot mathematically get an “A”. Grades are one thing that I am serious about.

So, hopefully everybody else will benefit from this.

at any rate, for the presentation: the powerpoint is done, the music is chosen, the outlines are printed.

God willing, all will go well.

When I saw this “assignment” for Carnival of Beauty, I didn’t think it would be an easy one! I’m not sure I want to “age”, gracefully or not. and (those who know me personally know this) I don’t do much (physically) that a person could describe as “graceful”. I don’t do well at physical activities that require “grace” and I think aging will be one of them!

I don’t think I want to think about aging – at least until I decide what I “want to be when I grow up”. (I’ll have to declare a major pretty soon). Today, I climbed the monkey bars, I slid down the slide, I pushed the merry-go-round and played on the swing.

Adult things intrude – I just did my income taxes and paid some bills. The furnace quit and I’m due for an oil change for my car pretty soon.

I was married for 23 years and I’ve tasted “til death us do part.”

My parents are the ones that are aging (and yet, my dad refuses to grow up also). They are “snowbirds” and just got back to Michigan from Florida for the summer. (ok – here’s the way my dad works. My mom had eye surgery on Thursday. She was supposed to go back for a recheck on Friday, but they decided to come home. So, I think they left right from the out-patient center on Thursday morning, because my dad called me on Friday night to tell me they were home. I have an aunt that is very ill and they wanted to get back, but still, you’d think that they could have at least waited until after the surgical re-check)

I don’t want to “grow old gracefully”.

What I want is the best that I can be at any age that I am.

I don’t want to stop climbing monkey bars or playing on swings. I like playing video games.

I want to keep the best of what “young” means and reach toward what the best of “adult” means. I want the “milk” and the “meat”.

I’m doing my best to be “young”.

That doesn’t mean trying to cheat death or dying or even aging.

Youth is a mental state, not an age.

This semester has been an adventure – I’m taking a music appreciation class with both of my kids. I’m a “non-typical student”, but with my kids I’m not – I’m just another student. It has been very fun and very cool. My daughter and I are a “group” for a group project – we’re doing a presentation on the history of Christian music. She asked to be in my group! (although it was a bit of a letdown when she followed up, “yeah. Tom would be more fun, but I’ll get a better grade with you.” – I can be fun…)

I have this “thing” that I carry with me. It’s taken a while to “fine tune” the system – some folks would say that I’ve been working with the “autistic population” for too long – all the “visual reminders” I’ve made for myself. Here’s the way it works: The keychain is attached to a pill container. There are safety pins with beads on them. There is a bead for every good thing I do for myself every day. You can see the “pink heart” bead. When I do something good for my heart, like take a walk, I get to put that bead in the container. There is a matching bead that I can put away when I do something good for my muscles, too. The green beads are for green tea – I have beads for water, vitamins, fruits and veggies, dairy and “omega-3″ foods.

There is another safety pin for “attitude”. There are tiny black beads to remind me that my skin needs care, too – they remind me to use moisturizer at work (which can be a very dry place). The pink beads remind me to pray. There is a bead that I can put away when I read my Bible. Maybe I should have one for blogging…

It may sound silly and maybe not very many people would need this. But every time I put a bead away, I’m reminding myself to be the best that I can be. Every bead I put away is something that I have done to make myself either physically or spiritually healthy.

Every bead I put away actually encourages me to do something to put the next one away.

What does this have to do with aging gracefully?

Maybe not much.

But it has a lot to do with the “me” that I want to be right now.

So, tomorrow I’ll go play on the monkey bars and the swing and the slide – and maybe I’ll even take a shot at the basketball hoop.

Five years ago today: Monday, April 9, 2001. My husband went into the radiology department for a “routine” CT scan.

He had had cancer surgery (called a whipple procedure) in November of 1999 after being diagnosed with cholangiocarcinoma (bile duct cancer). We had a wonderful surgeon, a Christian man who came to visit so that he could read the Bible with us – even after my husband was no longer his patient.

Fast forward to March, 2001. It was an eventful month.

My family was planning a trip to Florida over spring break to visit my parents (they had a little house on the Gulf coast.

My mom had a minor heart attack. While being treated for that, they discovered an eye condition (I can’t remember the name) – the arteries going to her eyes were becoming blocked – the end result would probably be a stroke. Average life expectancy: 5 years. (yes, this was five years ago; since then medicine has progressed and she’s had surgery that has taken care of the problem).

My husband was on new meds for “primary sclerosing cholangitis“. this is a disease that is either caused by his cancer – or it caused his cancer. He was losing weight, not feeling well, not eating well. But we were told (in March) that from what the hemotologist could see, the cancer was gone and he didn’t want to see us again until August.

On Wednesday, March 28 I talked to my mom. My dad had an angioplasty early in the day and they discovered that the main artery to his heart was 90% blocked. They scheduled a bypass for Monday (April 2). It turned out that his doctor looked at the results and said, “um. No. Friday.”

So we finished packing and left for Florida on Thursday morning (in our van).

Other than being in the hospital with my dad (the Sarasota hospital has an entire wing for geriatric patients with diabetes who have had cardiac surgery- only in Florida?), my husband was not doing well. He wasn’t able to eat and was exhausted. While we were in Florida I called the liver specialist, who scheduled a CT scan for Monday.

Art didn’t want to slow down and he wanted to spend time with our kids. We went to the Mayakka River State Park (a favorite FL place of ours). The other day I was looking through some photos and there’s a boardwalk in the tops of the trees and we have a photo of Art and I at the top of the boardwalk. We took the airboat ride and saw alligators.

Looming ahead was April 9, 2001 – the CT scan – which would hopefully tell us the extent of liver damage and what kind of progression we could expect from the PSC.

My daughter wrote this song

I have a fire in my soul
It’s a light in my heart
Because Lord I’m passionate for you
You’re always on my mind
And always in my heart
O Lord I am passionate for you
You’re a lamp to my path
And a guide to my life
Lord you are passionate for me
I will stand and lift my hands
And proclaim my love for you
I’m forever burning Lord
On fire with passion for you
I will worship all my days
And love with all my heart
Shouting out my passion in you
I have a fire in my soul,
Lord it’s a light in my heart
Because Lord I’m passionate for you
And I’ll sing all my days
Of your mercy and grace
O holy and perfect Lord
I am passionate for you
Proclaiming you’re passionate for me